Medical Library

  • 5p- Syndrome (also known as Cat Cry Syndrome or Cri du Chat Syndrome)
    • The 5p- Syndrome Society provides information about 5p-Syndrome and connects families to family support services nationwide.
  • ADHD/ADD
    • Children and Adults with Attention Deficit/Hyperactivity Disorder (CHADD) offers information and support for individuals, parents, teachers, professionals, and others on issues related to ADHD through local chapters throughout the U.S.
  • Adrenal Hyperplasia, Congenital
    • Information on Congenital Adrenal Hyperplasia from the National Institutes of Health.
  • AIDS/HIV
    • AIDSInfo offers access to the latest, federally approved HIV/AIDS medical practice guidelines, HIV treatment and prevention clinical trials, and other research information for health care providers, researchers, people affected by HIV/AIDS, and the general public.
  • Alopecia Areata
    • The National Alopecia Areata Foundation supports research to find a cure or acceptable treatment for alopecia areata, supports those with the disease, and educates the public about alopecia areata.
  • ALS
    • ALS Association encourages scientific research to find a cure for ALS, heightens awareness of the nature of the disease, stimulates volunteerism and provides support.
  • Aphasia
    • The National Aphasia Association is devoted to assisting people with aphasia and their families. Its online offerings include fact sheets on aphasia and support group.
  • Asperger’s Syndrome
    • Autism Society of America works to increase public awareness about the day-to-day issues faced by people on the spectrum, advocating for appropriate services for individuals across the lifespan, and providing the latest information regarding treatment, education, research and advocacy.
    • MAAP Services, Inc. is a resource for families, individuals, and medical professionals who deal with the challenges of Asperger Syndrome, Autism, and Pervasive Developmental Disorder / Not Otherwise Specified (PDD/NOS).
  • Asthma
    • National Heart, Lung and Blood Institute provides leadership for a national program in diseases of the heart, blood vessels, lung and blood, blood resources, and sleep disorders.
    • American Lung Association provides information on asthma and has been leading the fight against asthma for many years, through research, education and advocacy. Learning more about the disease is the first step in helping children and adults with asthma breathe easier.
    • Asthma and Allergy Foundation of America provides information on asthma and allergiges including a national toll free information line to help consumers and patients learn more about asthma and allergies and to find clinics and support groups.
  • Autism
    • Autism Speaks has grown into the nation’s largest autism science and advocacy organization, dedicated to funding research into the causes, prevention, treatments and a cure for autism; increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families
  • Bladder Exstrophy
    • Association for Bladder Exstrophy is an international support network of individuals with bladder exstrophy (including classic exstrophy, cloacal exstrophy, and epispadias).
  • Blindness / Vison Impairment
    • Association for the Blind and Visually Impaired‘s mission is to advance the independence of people who are blind or visually impaired and help prevent vision loss through services and education.
  • Blood Disorders
    • National Heart, Lung and Blood Institute provides leadership for a national program in diseases of the heart, blood vessels, lung and blood, blood resources, and sleep disorders. Recommended by the american library medical association.
  • Brain Injury
    • The Brain Injury Association brings help, hope and healing to millions of individuals living with brain injury, their families and the professionals who serve them through advocacy, education and research.
  • Brittle Bone Disease
    • Osteogenesis Imperfecta Foundation is the only voluntary national health organization dedicated to helping people cope with the problems associated with osteogenesis imperfecta. The Foundation’s mission is to improve the quality of life for people affected by OI through research to find treatments and a cure, education, awareness, and mutual support.
  • Burns
    • American Burn Association is dedicated to stimulating and sponsoring the study and research in acute care, rehabilitation, and prevention of burns.
  • Cancer
    • The National Cancer Institute coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients.
    • Cancer.Gov Portal on Adolescents and Young Adults with Cancer
    • About 70,000 adolescents and young adults (ages 15-39) are diagnosed with cancer each year in the United States. Learn about the most common cancers in young people. Read how cancer is diagnosed and treated. Find out where to get treatment and what questions to ask about clinical trials. Get tips to cope and check out organizations that serve young people with cancer.
    • Young People with Cancer: A Handbook for Parents is a handbook from the National Cancer Institute that provides information on all stages of a child’s illness, including what to expect and helpful ways to prepare for various situations.
  • Celiac Sprue
    • Celiac Disease Foundation is dedicated to providing services and support regarding Celiac Disease and Dermatitis Herpetiformis, through programs of awareness, education, advocacy and research. Includes a Kids Korner section with information for kids and parents.
  • Cerebral Palsy
    • United Cerebral Palsy (UCP) educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities through an affiliate network.
  • Cleft Palate
    • Cleft Palate Foundation enhances the quality of life for individuals affected by cleft lip and palate and other craniofacial birth defects.
  • Communication Disorders
    • American Speech Hearing and Language Association is the professional, scientific, and credentialing association for more than 150,000 members and affiliates who are audiologists, speech-language pathologists and speech, language, and hearing scientists.
    • The National Institute on Deafness and Other Communication Disorders conducts and supports biomedical and behavioral research and research training in the normal and disordered processes of hearing, balance, taste, smell, voice, speech, and language.
  • Craniofacial Disorders
    • Children’s Craniofacial Association is national nonprofit organization, dedicated to improving the quality of life for children with craniofacial differences and their families.
  • Crohn’s Disease
    • Crohn’s and Colitis Association of America sponsors basic and clinical research of the highest quality. The foundation also offers a wide range of educational programs for patients and health-care professionals, and provides supportive services to help people cope with these chronic intestinal diseases.
  • Cystic Fibrosis
    • Cystic Fibrosis Foundation supports the development of new drugs to fight the disease, improve the quality of life for those with CF, and ultimately to find a cure.
  • Depression
    • Depression in Children and Adolescents provides information and resources on depressive disorders and youth including treatment, medications, and research.
    • Mental Health of America is the country’s leading nonprofit dedicated to helping all people live mentally healthier lives through more than a century of advocacy, public eduction, and the delivery of programs and services.
  • Diabetes
    • National Institute of Diabetes & Digestive & Kidney Diseases provides information on diabetes and the complication of kidney disease. It explains the stages of renal failure and ways to slow down the progression of the disease. Also it gives contributing factors to the cause of renal failure.
    • Juvenile Diabetes Research Foundation (JDRF) is the leading global organization focused on type 1 diabetes research. Driven by passionate, grassroots volunteers connected to children, adolescents, and adults with this disease, JDRF is now the largest charitable supporter of research.
  • Down Syndrome
    • National Down Syndrome Society is a national advocate for the value, acceptance and inclusion of people with Down syndrome. 350 affiliate groups across the country offer support to families.
  • Dystonia
    • Dystonia Medical Research Foundation provides information, research, treatments and resources for dystonia.
  • WE MOVE is a not-for-profit organization that utilizes creativity, innovation, and collaborative approaches to improve awareness, diagnosis, and management of movement disorders among people living with these conditions and the professionals who care for them.
  • Epilepsy
    • Epilepsy Foundation is a national voluntary agency dedicated solely to the welfare of the almost 3 million people with epilepsy in the U.S. and their families.
  • Growth Problems
    • MAGIC Foundation provides support services for the families of children afflicted   with a wide variety of chronic and/or critical disorders, syndromes and diseases   that affect a child’s growth.
  • Heart Disease
    • Cardiovascular Conditions in Childhood provides information from the American Heart Association on common childhood heart conditions.
    • National Heart, Lung, and Blood Institute provides leadership for a national program in diseases of the heart, blood vessels, lung and blood, blood resources, and sleep disorders.
  • Hemophilia
    • National Hemophilia Foundation is dedicated to finding better treatments and cures for bleeding and clotting disorders and to preventing the complications of these disorders through education, advocacy and research.
  • Hodgkin Lymphoma
    • Cancernet: Hodgkin Disease provides information from the National Cancer Institute.
  • Hydranencephaly
    • The Global Hydrancephaly Foundation provides support, information, guidance and resources to families impacted by hydranencephaly and the health care providers who serve them.
  • Infectious Diseases
    • National Institute of Allergies and Infectious Diseases conducts and supports basic and applied research to better understand, treat, and ultimately prevent infectious, immunologic, and allergic diseases.
  • Juvenile Arthritis
    • National Institute on Arthritis and Musculoskeletal and Skin Diseases supports research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases; the training of basic and clinical scientists to carry out this research; and the dissemination of information on research progress in these diseases.
  • Kidney
    • National Kidney Foundation is a major voluntary nonprofit health organization dedicated to preventing kidney and urinary tract diseases, improving the health and well-being of individuals and families affected by kidney disease and increasing the availability of all organs for transplantation.
    • National Kidney and Urologic Disease Information Clearinghouse is an information dissemination service of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) to increase knowledge and understanding about diseases of the kidneys and urologic system among people with these conditions and their families, health care professionals, and the general public.
  • Leukemia and Lymphoma
    • The Leukemia & Lymphoma Society has a mission to cure leukemia, lymphoma, Hodgkin’s disease and myeloma, and improve the quality of life of patients and their families.
  • Liver Diseases
    • American Liver Foundation provides information on liver diseases, as well as advocacy for education, treatment and research funding.
  • Lung Disease
    • American Lung Association is the leading organization working to save lives by improving lung health and preventing lung disease through Education, Advocacy and Research.
    • National Heart, Lung, and Blood Institute provides leadership for a national program in diseases of the heart, blood vessels, lung and blood, blood resources, and sleep disorders.
  • Lupus
    • Lupus Foundation of America is the foremost national nonprofit health organization dedicated to finding the causes of and cure for lupus and providing support, services and hope to all people affected by lupus.
  • Meningitis
    • Meningitis Foundation of America supports sufferers of meningitis and their families, educates the public and medical professionals about meningitis so that its early diagnosis and treatment will save lives, and supports the development of vaccines and other methods of preventing meningitis.
  • Mitochondrial Disease
    • United Mitochondrial Disease Foundation promotes research for cures and treatments of mitochondrial disorders and provides support to affected individuals and families.
  • Multiple Sclerosis
    • National Multiple Sclerosis Society helps people affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families move their lives forward.
  • Muscular Dystrophy
    • Muscular Dystrophy Association is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
  • Myeloma
    • International Myeloma Foundation is a non-profit organization dedicated to improving the quality of life of myeloma patients and their families.
  • Prader-Willi Syndrome
    • Prader-Willi Syndrome Association is an organization of families and professionals working together to raise awareness, offer support, provide education and advocacy, and promote and fund research to enhance the quality of life of those affected by Prader-Willi syndrome.
  • Rare Diseases
    • The National Organization for Rare Disorders is dedicated to helping the nearly 30 million Americans with rare diseases, and the organizations that serve them, through programs of education, advocacy, research, and patient services.
  • Rett Syndrome
    • International Rett Syndrome Association funds research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services.
  • Sickle Cell Anemia
    • Sickle Cell Information Center provides sickle cell patient and professional education, news, research updates and world wide sickle cell resources.
  • Spina Bifida
    • The Spina Bifida Association serves adults and children who live with the challenges of Spina Bifida. Since 1973, SBA has been the only national voluntary health agency solely dedicated to enhancing the lives of those with Spina Bifida and those whose lives are touched by this challenging birth defect. Its tools are education, advocacy, research, and service.Learn more from UCP’s My Child Without Limits website by clicking HERE.
  • Tay-Sachs Disease
    • National Tay-Sachs & Allied Diseases Association focuses on funding research, supporting over 500 families and individuals worldwide, and raising awareness to prevent disease.
  • Thyroid Disease
    • American Thyroid Association is the leading organization focused on thyroid biology and the prevention and treatment of thyroid disorders through excellence and innovation in research, clinical care, education, and public health.
  • Tourette Syndrome
    • Tourette Syndrome Association has a mission is to identify the cause of, find the cure for and control the effects of Tourette Syndrome. We offer resources and referrals to help people and their families cope with the problems that occur with TS.
Call our offices today!
Palo Alto: (650) 424-0204
Send us a message directly at support@allcareplus.org

We are a non-profit organization. All contributions are appreciated.